I’m sure many of you look at that as a typo. If you recognize the word, likely it’s because you should, you have reason to, you or another in your life has been affected by this. What is it? Meningioma is a type of brain tumor, the most common primary brain tumor.
I don’t think it would be a stretch to say that if your child is diagnosed with a growingly ‘common’ disorder, you wouldn’t have far to go to find support, information, another like you, that you could look into the eyes of and recognize as someone experiencing what you do. Someone who has or will go through the same battles or have the same questions as you.
Though it’s considered the most common primary brain tumor, before Liz Holzemer, Brain Tumor Survivor and Author of “Curveball: When Life Throws You a Brain Tumor” founded Meningioma Mommas in 2003, it would seem support might have been far off. Because of this, and because this is the anniversary month marking another year that Holzemer has been brain tumor free, Meningioma Mommas is the first community resource to be highlighted in a month long Community Spotlight.
Liz Holzemer has been gracious enough to afford me an interview and you a glimpse into her experience and how it has affected her. You can read her entire interview here, on the Special Needs Parents Examiner Page. In the meantime, please take a moment to visit her site, let her know you stopped by, check out her book, and please, keep her site in your bookmarks…you never know when you or a loved one might need the guidance, support and education that can be found on Meningioma Mommas.
We know our bodies better than anyone and are our own best advocates. This is especially true for women who wear so many hats and put themselves on the back-burner. We need to change our thinking and give ourselves permission to put ourselves at the top of our never ending “TO DO” lists. That’s not being selfish; it’s ensuring we’re taking care of ourselves. Otherwise, we’re useless to everyone one else.
You have to be your own advocate because no one else will go to bat for you. We have to trust that inner voice each of us possesses. It’s a lesson anyone can grasp and apply to his or her life regardless of the situation.