He likes to lull them upstairs….not for any reason other than to antagonize them as a good brother would do.
“I’m going to your room…” is what you can hear him singsong as he scampers towards the stairs. Whichever sibling is the focus of his present tease has a full-on panic attack as if he’s going to go into their room and wreak havoc rather than soak in the excitement of a chase and a bounce or two on their bed as he awaits their attack. While it’s a cute attempt at interaction, it’s also quite frustrating depending upon what task you’re trying to get done and how much panic is enlisted.
Yet, as I type this, I watch my words unfold on the screen. “He scampers”, “a chase”, “a bounce or two”, and I think about my movements on this particular night. How I found myself dashing after him for the not-so-simple-task of keeping peace. As I stopped him on the stairs, I realized, he did just that, he scampered. Quickly…and in that moment, our history, his history flashed before me.
I thought of how this boy of 8 engaged me in a marathon towards the stairs to prevent a house explosion of sibling angst. I thought of how effortless it is to combine a crawl / run up the stairs, though his own personal gait and flying rouge right arm gave hint… This boy whom we thought might not walk for years, finding at 2 ½ he made his first independent, purposeful steps.
I reflected on the beginning…our journey with our boy. I count the number of diagnosis’ that have been added to his plight, and I find myself sitting in wonderment. The strength he brings, defying all the challenges set forth for him, pushing them aside, walking through their muds allowing whatever sticks to stick yet continuing on – it amazes me. Smiling, joking, living life and appreciating all he finds; even when his body fails to dissuade the regression that comes, he pushes back.
And to think, this all started with two words, “Cerebral Palsy”. Two words that can no longer be used as a sole descriptor. Replaced…not by words defining a diagnosis. Instead, these two words have been replaced by what he and every person with physical and intellectual challenges represent, “Super Hero”.