Jackson’s Journey

What Do You Say When a Miracle Turns 10?

The happiness I have in my heart can hardly be given life with mere words. My oldest son, the one who has set us out on a journey that has tested our strength and fortified us individuals and as a family, turned 10 day. Ten. Double digits. The Golden Birthday followed by Golden Years. Admittedly, I’m panicking a bit inside… I have a 10 year [...]

On This Day, 6 Years Ago A Journey Begins

Six years ago today, J’s body and brain openly betrayed him for the first time… that we know of. Six years ago today, 9 months pregnant, I watched in horror as his eyes remained in the back of his head; as his mouth drooled; as his lips turned blue. Six years ago today, we unknowingly began a journey that has lead us through a number [...]

Epilepsy Is Not Invisible – Repost from Jackson's Journey

Originally published on Jackson's Journey This is me.  This was take a few short months before my first seizure on December 1, 2006.  After my first seizure, my sister was born within days and I turned four within a month.  Life changed. I was slowly trying to prepare Mom and Dad for what was to come.  I could feel it within me, the surge of [...]

My First Experience With Epilepsy – A Mother's Tale

It was a little before bedtime.  J was enjoying a treat of watching “Finding Nemo” (his favorite movie at the time).  We sat on the sofa together.  He was nestled in the arch of my arm; it was towards the end of the movie. I was 9+ months pregnant with O.  C was in the kitchen, a glance away from us when the sound of [...]

A Supportive Community Lies Right Before You

When I began blogging so many years ago… so many formats ago, I had no idea where my life was heading. I began writing as I do now, to share experiences, opinions, resources. I shared our family’s struggles and triumphs so that others would not feel alone in their journey. No one should ever feel that… though we all do. I never imagined I’d make [...]

Following One Boy's Hemispherectomy as Jackson's Journey Continues….

If there’s one thing our research has taught us, a hemispherectomy is no small surgery… though common sense says that too. A hemispherectomy “is a very rare surgical procedure where one cerebral hemisphere (half of the brain) is removed or disabled. This procedure is used to treat a variety of seizure disorders where the source of the epilepsy is localized to a broad area of [...]