Category Archives: Epilepsy

Sudden Death Due To Epilepsy

Sudden Death Due To Epilepsy

November is Epilepsy Awareness Month. We will be hosting a month long campaign that will provide valuable information, facts, resources about Epilepsy, and what you can do to not only manage the day to day living with epilepsy but also become a voice to be heard. A crucial important fact regarding epilepsy that needs to…Continue Reading

Being Aware of Epilepsy

We’re 6 days into my purple lights and I can’t help but think of all that’s going on in the world.  I wonder if the purple is lost somewhere… if people make the connection of purple representing epilepsy; if anyone is even thinking about epilepsy.  About awareness.  I wonder if people realize that their neighbor,…Continue Reading

What Do You Say When a Miracle Turns 10?

What Do You Say When a Miracle Turns 10?

The happiness I have in my heart can hardly be given life with mere words. My oldest son, the one who has set us out on a journey that has tested our strength and fortified us individuals and as a family, turned 10 day. Ten. Double digits. The Golden Birthday followed by Golden Years. Admittedly,…Continue Reading

On This Day, 6 Years Ago A Journey Begins

On This Day, 6 Years Ago A Journey Begins

Six years ago today, J’s body and brain openly betrayed him for the first time… that we know of. Six years ago today, 9 months pregnant, I watched in horror as his eyes remained in the back of his head; as his mouth drooled; as his lips turned blue. Six years ago today, we unknowingly…Continue Reading

You Say You Don’t Want a Cure?  Well I DO!

You Say You Don’t Want a Cure? Well I DO!

You say you don’t want a cure.  Well I do. I get why you don’t… this is a part of your child, an imperfect piece perfectly imbedded, merged, marinated, simmered and fused within every nuance of your child.  You can not separate autism, or epilepsy, or down syndrome, or whatever it is from your child…Continue Reading