Category Archives: Epilepsy Resources

Epilepsy can be one of the most terrifying invisible disabilities there is. It can strike at any time. It can be controlled or spiral out of control leading to brain surgery or even death. This site has a special passion for people living with epilepsy and continually searches for resources related to epilepsy. Below is a listing of resources we have come across. Listing a resource here does not in any way imply that we recommend the resource. We are merely informing about what is out there. As always, please do your due diligence. If you know of a resource, you can also submit them to be added to our pages for others by following this link and filling out the form.

Sudden Unexplained Death in Epilepsy – It’s Time To Talk About It

Posted on February 25, 2013 by Susan Noble • 4 Comments

One of the many topics of conversation between Epilepsy parents is the lack of communication or discussion about SUDEP (Sudden Unexplained Death in Epilepsy) it’s not a topic any one wants to talk about due to the fact it deals with talking about death. Honestly I don’t know anyone that truly does like to talk… Continue Reading

Filed Under: Contributors, Daily Life, Diagnosis', Editor's Pick-Susan Noble, Editors Pick, Epilepsy Resources, Epilepsy/LKS, Goodie Bag, Resources, The World Around Us, What Is...(diagnosis explained)

I don’t want this life for your child by Cheryl Bailey – Letters Series

Posted on March 26, 2012 by Cheryl Bailey • 5 Comments

An Open Letter to all who Support the Greater Good Concept, I am labeled a fear monger. I am told I am misguided. I am told the government knows more about how to keep my child safe from illness than I do. I am told to trust in vaccines. I did. They destroyed my son’s… Continue Reading