Well, we thought, why not. He has Cerebral Palsy, Autism, Epilepsy (a rare form of epilepsy at that), Sensory Processing Disorder…why not hit him with an allergy to the sun just for giggles (we would say in our most sarcastic jokes). All the testing that could be done was only for a final determination that… Continue Reading
Category Archives: 5 Minutes for SN
Who Knows Your Kid Best?
We who have raised him, helped fight his demons cried with, held down for medical procedures, given therapy to, laughed with, cried with, marveled over and advocated for! How could anyone know him better?!? But on the day of this statement, he is correct…not that “they” know him better, but similarly or as well as… Continue Reading
The meds in are in the bag
Alternate Tylenol and Ibuprofen every two hours Alternate daytime / nighttime cold / cough remedy OR Allergy antihistamine – whatever seems to work well or that particular kiddo Vicks Vapor Rub (aka Mentholatum for other ‘old school peeps’ like me) on the chest and slathered about the feet at night with socks Warm mist humidifier… Continue Reading
How I Got An Insurance Advocate
Remember that list of caseworkers I told you about? Well, in my haste to count on all my fingers the number of caseworkers in our life, I neglected one very, VERY important caseworker / liaison we’ll call “Miss W, The Insurance Gal”. I could tell you a lot about “Miss W, The Insurance Gal”; give a number… Continue Reading
Just Do It!
With J’s ‘improvements’ rapidly sliding down hill with the more time that passes between his last IVIG treatment and the present, we’re headed back down the road of massive meltdowns. Some of these are from our own doing. Case in point: We headed to a local large store for FREE Santa photos. We left early enough to… Continue Reading
Caseworkers. Caseworkers. Everywhere Caseworkers….
My calendar this time of the year gets a little cramped. We have a few birthdays (read that as all three kiddos), obviously Thanksgiving, Christmas, New Years (which also happens to be our anniversary). There’s only two annual events I attend for any given year…both this month – what AM I going to make for… Continue Reading
How Would It Be?
When you watch other children, the same age as yours…when you watch other children in the movies, through the streets, wherever you might be, do you ponder? Do you compare? Do you wonder what life would be if only things were just a little different? Do you wonder what your largest struggles could be? Stop… Continue Reading
My Guest Post : Pregnancy and The Gift of Advice
“It will work out. When your daughter’s 18 she probably isn’t going to be using a binkie no matter how you go about that. So, you’ll figure it out and it will be just fine.” (Read my Guest Post on 5 Minutes for Special Needs : Pregnancy and The Gift of Advice–>>) … Continue Reading
Our Children Will Grow Up…Then What – My Guest Post
At the end of our lives, we again become vulnerable. Charged to those with hands we hope are gentle, hearts we hope are warm. Family we wish…if all goes well. But what about our children? So many times we are focused on the now, as we should be, as we need to be…with the future… Continue Reading
"Why My Son With Autism Inspires Me" by Emily Vanek of ColoradoMoms.com – A Guest Post
When I was a younger, I fantasized about having a family. A husband, a few kids and possibly even that highly coveted white picket fence. Never did I imagine that I would be raising a child with Autism. Back when I was a child, the only connection I had to Autism was my cousin. He… Continue Reading
Classroom Inclusion and SPD – My Guest Post
Every school year proves to be different than the one before; this year is no different. This year though has proven to hold an interesting change; J’s teacher wants him. Now, that simple statement is convoluted and confusion. I’m sure some of you might be saying ,”of course J’s teacher wants him” or “does that… Continue Reading
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